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Office of Rare Diseases
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Information Centre for Rare Diseases and Orphan Drugs :: News - Third Eastern European Conference on
www.raredis.org
Information Centre for Rare Diseases and Orphan Drugs (ICRDOD) in Bulgaria - the first Eastern European information and educational service, dedicated to all patients, associations and medical professionals, interested in rare diseases and orphan drugs. T
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KINDLER SYNDROME
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Contact a Family - for families with disabled children: information on rare syndromes and disorders
Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders.
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Fibrous Dysplasia Support - new home page at fdsol.org
Site is dedicated to providing support for individuals and families seeking answers on Fibrous Dysplasia, a rare bone disease that effects children.
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CHERUBS - Congenital Diaphragmatic Hernia Awareness Research and Support - CDH
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Support and Research Organization for families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia (CDH), International CDH Support Group leading the path for Congenital Diaphragmatic Hernia Research and Support
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NORD - National Organization for Rare Disorders, Inc.
National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.
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